So life has been hectic for the last few months and as I always do when that happens, I’ve been neglecting my own personal writing projects again. I have plenty of ideas rattling around in my head and some of them even see the light of day when I find time to scribble them down in one of the Moleskine notebooks that I keep with me at all times…but most of them stay confined to the deep recesses of my imagination, only allowed to come forward and show themselves on the rare occasions when I have the time and space to daydream. My current favorite venue for this activity is the bath tub. There are several reasons why this is the ideal spot for creative thinking. First of all, as any mother knows, once you have a child there really is no such thing as privacy anymore. Your children will follow you around the house without any regard for what activity you might be engaging in – if they “need” you, they don’t care what you’re doing. But now that my son is a teenager, he’s a little creeped out at the thought of seeing me naked so if I say that I’m going to be taking a bath before heading in to the bathroom, I can be assured that he won’t come in and bother me unless the house is on fire. Also, I’ve always been the kind of person who finds a hot bath extremely relaxing. I run the water as hot as I can stand it, add some epsom and sea salts to soothe my achy joints along with some lavender and bubble bath, light some candles, turn on some music, and soak until I get prune hands…pure bliss! Soaking in a deep, warm tub feels very safe and nurturing to me…so much so that I spent so long laboring in the bath tub at home that my son was almost born on the ferry to Seattle. I was scheduled to deliver at a hospital in Seattle that had only a couple birthing suites with hot tubs so the midwife had advised me that if it was important to me to use a hot tub during my labor, I should call ahead when I realized I was going to be coming in to request one of the suites. But when I called, I was told no suites were available…so I decided to stay at home in my own comfy tub as long as possible, which ended up causing a little bit of a panic in a deserted ferry restroom on the way to the hospital later that evening but since everything turned out just fine, I still love hot baths. I feel like I can think more clearly while soaking in the bath: outlines for screenplays, novels, short stories and more all fill my head, different ideas competing for attention in what is a suddenly crowded field. On a day to day basis, I feel like I get bogged down with the mundane: what medication to take and when, going to seemingly endless medical appointments, taking my son to school and his appointments, household errands, finding time for work, etc. It takes so much time and energy just to make it through the day (and sometimes I don’t make it through – sometimes I’m so exhausted by late afternoon or early evening that I collapse on my bed, absolutely spent) that there is usually simply nothing left over for creative pursuits. May is Lupus Awareness Month and someone from the LFA asked me to contribute something to a project that they were working on where lupus patients and family members were sharing stories about how lupus impacted their lives. I haven’t finished my contribution yet (of course!) but the main point of my piece was that lupus is an incredibly frustrating illness, not only because of the debilitating pain and fatigue and the unpredictable nature of the flares, but also because sometimes you can’t help but grieve for the life that you lost before you got sick or that you might have had if it had never happened. A systemic autoimmune disorder like this changes every aspect of your life and while I don’t want to live my life in bitterness and regret, I think it is important to recognize and acknowledge these feelings…I can’t deal with them and move on if I don’t. So anyway…in the warm embrace of a hot bath, I can ease away not only my physical aches and pains but my mental burdens as well. For an hour or so, I can let my mind wander not in the boring and constraining world of reality but in the expansive and exhilarating world of creative potential. Until I can move there permanently, at least I have a temporary refuge.
Posts Tagged ‘health
(Not so) Deep thoughts
Lupus Awareness Month
May is Lupus Awareness Month and May 10th is World Lupus Day. Lupus is a chronic autoimmune disease that strikes mostly women of childbearing age and causes inflammation, pain, and damage to various parts of the body. I was diagnosed with lupus in 2004 so it is a personal issue for me but lupus affects nearly 1.5 million people in the United States and an estimated 5 million people worldwide so the chances are that someone you know is affected by the illness. In honor of Lupus Awareness Month, check out the Lupus Foundation site and learn a bit more about this devastating illness. If we can raise awareness, we might be able to find a cure.
Back on track
The last few weeks have been ridiculously busy, with way more drama than I usually like to let enter my life, so unfortunately maintaining this site hasn’t been a priority recently. I’m pleased to report, however, that things have settled down a bit and therefore I can now refocus my attention on working on some improvements to this site…I have several ideas that have been percolating in my mind for quite a while now – it’s just a matter of finding the time to actually make it happen. So anyway…watch this space: there will be soon be many more product reviews, advocacy alerts, special features and much more. Now I just need to find the time to execute all these great plans of mine…
From Planned Parenthood Arizona:
SB 1309 will prevent minors from confidentially accessing to preventive health care and information that is currently available to them in Arizona.
This bill would make Arizona the only state in the nation to prevent minors under the age of 18 from confidentially accessing STI testing and treatment.
All 50 states allow minors to consent to testing and treatment for STI’s, and many explicitly include testing and treatment of HIV.
The public health interest in allowing such confidential treatment is overwhelming, as without confidentiality, minors will be reluctant to seek care and will put themselves at risk.
A broad coalition of organizations in Arizona have come out against this harmful bill, including the Arizona PTA, the Arizona Public Health Association, Arizona Family Planning Council, the Arizona Chapter of the American Academy of Pediatrics, Arizona Education Association and the March of Dimes.
We must protect the health of Arizona’s young people!
Please sign the coalition’s online petition encouraging the Arizona Legislature to stop SB1309!
SAY NO to more government regulations that create undue burden on parents, healthcare provider practices, clinics and hospitals.
SAY NO to more government regulations that create undue burden on a parent’s ability to get timely healthcare treatment for their babies, children and teens.
Where are the cures?
When I came across this site today, I was both saddened and outraged. I’ve been living with an autoimmune disorder for nearly seven years now so obviously the issue of finding new treatments for chronic illnesses is a highly personal one for me, but as the video on the Where are the Cures website so succinctly explains, 1 in 3 Americans lives with a chronic and/or life-threatening disease and these diseases have a $1.3 trillion dollar a year impact on our economy so it really is something that we should all be concerned about. Check it out and if you like what you see, sign the Patient’s Manifesto. Let your voice be heard!
Racing for a Cure
I received this today from my local chapter of the Lupus Foundation of America and since I always want to do whatever I can to raise awareness of this devastating disease, I thought I should pass it on:
Wayne’s story:
Almost four years ago my wife, Karla, was diagnosed with Lupus. There has been very little research and development for this disease and no new treatment drugs have come out in the last 20 years or longer.
Toyota Racing is sponsoring a contest in which entrants design a racecar that the public will vote on. The winning car will serve as a pace car for NASCAR’s All-Star race in Charlotte, NC later this year. I have designed an entry to raise awareness for Lupus and the need for a cure. I would ask that all our employees take 1 minute out of their day to vote for my entry in order to raise awareness for Lupus. You can vote once a day from each computer until March 5th. I have forwarded a message similar to this to everyone in my address book from my personal computer, as well as posting the link on Facebook and encourage everyone to please do the same. Help bring the message of Lupus Awareness to millions of people this May!
Here is the link to vote:
http://www.sponsafier.com/#/gallery/view/16971
Remember, you can vote once a day until March 5th.
Thanks for your help and support,
Wayne Parris
Sylva, NC







